‘More than my disability’ campaign turning pain into community movement

In 2022, Monix Hetemeyer experienced a life-altering accident that would redefine her path in life. It did not, however, redefine her purpose.

During a recent interview with the News Room, Monix said what began as a simple evening out after the COVID-19 pandemic turned into a traumatic event when a car, driven by an unlicensed and uninsured driver, suddenly veered into an outdoor dining area and slammed into her table.

“We were rushed to the hospital. At first, I was still hoping I wouldn’t have to lose my leg,” Monix said.

Debris had deeply infected her left leg, and despite medical efforts, the infection continued to spread posing a life-threatening risk to her organs. Faced with an impossible decision, she chose to undergo an amputation to save her life.

“Living 36 years with all your limbs and then losing one… nobody can fully understand the strength that takes,” she said.

Going off her own experience, she adapted to her new reality but began to see a gap in support for people like herself. Monix, a University of Guyana Lecturer and pastor said her faith carried her and she was inspired to form the ‘Stand With Me’ Foundation, a space for persons with an amputation to connect, share, and heal together.

“We wanted to create a community. A safe environment where amputees can share their stories, find support, and be reminded that they are not alone,” she said.

She said some 15 persons are actively with the foundation.

Monix said she wants to create local awareness for persons and with Limb Loss and Limb Difference Awareness Month being observed in April, the campaign was launched.

“There’s this assumption that our identity is rooted in the trauma.

“But we are more than the loss we’ve endured…Sometimes people feel like certain possibilities are gone after losing a limb. But what I want them [person with an amputation] to know is this: whatever you are going through does not define you,” she said.

Her mission is not only to inspire but also to broaden society’s understanding of disabilities. Persons can reach out to the foundation to support, join and even share their success stories, inspiring other persons with amputations. Other members include Sheantta Henry, Crystal Gill, Rocala Williams, Treasurer, Dr. Vasana Henry, and Fiona Rassoul.